I’m livening the place up a bit at a time. We brought a couple of blankets, one from our church and a prayer blanket from a friend’s church, and added them to the room. Slowly, it’s going to be a nice home for us. I still have the rolling cart that we used for Amanda’s…

The MRI scheduled for early in the morning was pushed to after lunch. It would have been perfect timing for me to get coffee after the MRI if Amanda had gone to the early morning one. She was NPO, no food, so we had to wait. We haven’t been hitting StarBs too hard. Amanda hasn’t…

Amanda was up before me to get a shower in case they came to get her for the liver biopsy early. It was a good thing she did since they came to get her not long after she was out. After she left, the team came by; I listened intently while they chatted in the…

By Sunday morning, Amanda had lost 12 pounds in one day. Though we were headed in the right direction with fluid, our battle with getting a tray from the cafeteria that was right seemed to prove difficult. We waited in the morning for the transplant team to come by. The PA finally said they would…

On Friday, we had a Zoom meeting to discuss what to expect with a transplant. Being our second round, we didn’t learn much new. A lot was about being out patient for the call, which didn’t apply to us anyway. After that, we were still in cheat mode, going for breakfast at a place close…

Monday was a flying trip back to Houston. Poor Tank had been going with us back and forth, so he was sad when packing, but now gets excited when I load the Yukon, thinking he’s going with us; this morning was no different. He is a rescue and had terrible separation anxiety when we got…

Ok, I know it’s been a minute since my last regular update. Last update, we were inpatient in Houston, and now we are in Nashville, admitted at Vanderbilt. I’ve been too busy to make updates. When I pulled my Mac out last night in the hotel, I wasn’t feeling it and fell asleep with Amanda…

If you read our medical journal regularly, this post may seem redundant. If you need an update on what is going on, I’m going to do my best to catch you up from the beginning of Amanda’s heart journey as quickly as I can. I’ll get back to my regular journal posts and catch everyone…

Looking back, with me starting to write yesterday’s post in the morning while we were processing things and finishing in the evening after we made a decision might have been confusing! We are 100 percent going to Nashville for Amanda to be admitted solid till transplant. I think it was a sign in itself that…

Last night, as I walked the hall to get some ice and water, the charge nurse said she just found out Amanda was back. She mentioned that when they called about a high heart rate, she looked at the board and saw Amanda was the culprit, telling them Oh yeah, she’s ok, we don’t worry…