I had yesterday’s post mostly written and then lost it. The perils of using my MacBook to write and then using my iPhone to take notes on the same document. I started retyping last night but gave up. Not much happened anyway, Tank did have a meet and greet with the dog sitter. She is great and even brought cookies for him, so how could he not love her! Today had a big twist, so I will jump to it.
Dr Nair came by prior to rounds and just got right to it, saying he had some not so good news. It turns out the Methodist will not transplant within six months of rejection. The direct transfer is now tabled. He said someone had been out from the Methodist transplant team and he just spoke with him upon his return this morning. I’m not quite sure why this wasn’t revealed weeks ago, but that doesn’t matter now. I’m over being mad about it, we’ve got bigger fish to fry.
He mentioned casting a broader net again. He’ll reach out to a Dallas center and Vanderbilt in Tennessee. Ceders in LA seemed not to be a choice this time. I still feel Methodist is the place. The six-month clock started in January, so we’re already almost halfway there. We’re keeping the appointment next week with Methodist. He seemed to think things may be easier if we saw them as outpatient. I wonder how hard and fast the 6-month rule is, too. I’ve just been raring to get to Methodist to start beaming them with questions anyway. It’s a good thing we didn’t get a transfer then be told that. I might not have kept as cool of a head with them as I did with Dr. Nair. He told us if you have questions, then said I’m sure you have a 100. I quickly and low key smart assed said yeah we just sign a lease, so I do!
It’s hard blow since we just moved into the apartment and now looking at the possibility of another move. Things lined up so well for the move to Houston with the flexible apartment manager, how I can work up here, the dog sitter, and so on. I really felt a prompting to get the apartment, too, and saw confirmation. I’m just so confused about whether we’re back to going out of state. I’m praying this is like last time and it’s just an inconvenience and not an out-of-state transfer. Dr Nair is supposed to come back to see us later today to fill us in on what he finds out.
The plan now is to get us out of here, at least. We will try the on-body diuretics infuser as an inpatient to see if it can keep the fluid retention at bay. If it does, we can hopefully escape here for a bit. If needed, we can come into the clinic to get IV diuretics as an outpatient. Amanda is apprehensive that anything will work, though. I’m praying we can find the right combination to keep us out of the hospital. She took it pretty rough, was overwhelmed, and needed time to process and not hear me say I wasn’t worried. I do however think some fires are in order for this afternoon!
I still don’t feel bad about the apartment, we will obviously need it if we can get a reprieve from the hospital. No matter how bad Amanda wants to go home, we’re not. Houston is home for now, unless we’re moving to Tennessee, that is! In my opinion, Dallas isn’t an option, no one goes to Dallas for heart care, much less transplants. I don’t want to grab at straws just because Methodist has us waiting, I’d rather wait even if that meant inpatient for Amanda. I can maintain everything here in Houston, most notably my job and thus my insurance.
On a funny note, Sunday night, I heard a train just before I was getting ready to leave the hospital, that meant I needed to get my act together. They leave every 6-10 minutes, and it takes about five or more to get to the platform. I got Amanda her nighty things and quickly made my way to catch the train. Amanda called as the train pulled up. I thought she had seen me out the window and wanted to say hi. She quickly said, didn’t you drive to the hospital tonight? As a matter of fact, I did; I guess I’m already used to the transit life! Luckily she caught me just before I hopped on.
Leave a Reply