• Back in the Groove

    Saturday, we grabbed a few more things to decorate the apartment. Amanda is finishing it up, and it is looking great. We needed to stop by and get a few groceries that she needed to be set for when I left for work. I was scheduled for an early train out on Sunday morning. I…

  • Quick Trip Home

    Wednesday, we had the IV Bumex scheduled first thing when the clinic opened. We were the first ones there ahead of the masses, all scheduled around the same time for labs. No one else was there, and we were taken back right away. Amanda asked to speak with Teia, our coordinator. She asked about subsequent…

  • Clinic Day

    Amanda was up earlier than me, getting ready for the clinic appointment. When I walked into the bathroom and saw her, I could easily tell she was retaining more fluid. Six pounds from the previous morning, she said. A total of 13 pounds up since discharge. I already had a reminder set to call the…

  • “Mab” Day

    Of course, we left enough time to grab some StarBs on our way to the cancer center for the Daratumumab infusion. The closest ones were all in grocery stores. A Kroger’s was right in the way, and they surprisingly had the order-ahead option, so I made the order ran in and grabbed it. The cancer…

  • Getting Settled

    We’ve been busy since getting to the apartment. Amanda wanted to get out on her first day back. She had a few things she needed to return that she bought when we came up the time before last when the fluid levels were up. It’s hard for her to have clothes that fit when she…

  • Discharged but Slowly!

    Last night, I waited forever for my regular bus, but it was running behind. While waiting at the transit center, I sat beside a guy, and we chatted. He was waiting for his wife to get off work, catch a 40-minute bus ride to the transit center, and hopefully catch the last bus to where…

  • Maybe Tomorrow is the Day

    Amanda was up a couple of pounds this morning, but it didn’t seem to bother the team. She is likely right at her baseline now. The cardiologist is planning on discharging us tomorrow if everything holds. Her kidney levels decreased a bit, and they increased the newer diuretic, Torsemide, closer to what it was before.…

  • Getting Closer to a Discharge

    No matter how good my intentions to go to bed early are, I never make it! I have to take Tank out for a walk the minute I get there, and then I somehow always find something that needs to be done before I get to bed, and then I’m up well past midnight. Tank…

  • So Close Yet So Far Away

    When it was time for Amanda’s second round of morning meds, she commented on the number of pills with the added oral diuretics. Fifteen, not counting the five rejection meds she takes at 5 am. The charge nurse was our nurse today. I’d planned on just skipping asking our nurse for a wheelchair to go…

  • Getting Closer to Busting Out

    Friday night, Amadna never got her evening dose of Bumex. The night nurse finally heard back from the doctors, but when she came in, Amanda was asleep and didn’t give it. In the grand scheme of things, it didn’t matter; by Saturday morning’s weight check, she had lost 3 pounds. It seemed we really were…