We ended up leaving the hospital on Friday. Probably the latest discharge we’ve ever had, almost 9 pm. So late it almost didn’t happen. IR and surgery were arguing back and forth about blood thinner dosing. IR wanted a full dose of the costly Eliquis oral blood thinner, and surgery wanted a half dose. Apparently…

I was locked and loaded to plead our case to keep the dialysis catheter out and not put it back in when the team came by. Amanda had strict instructions from me to hit them hard with why we don’t want it back in, in case they were there before me. I told her to…

I was up early this morning, before 5, to get to the hospital in time for all rounds. I had coffee in hand on my way in for sure. I walked in as the surgery NP and new resident were going over things. The NP was one we knew well, I liked her; she said,…

It was early, around 5 am when surgery came by to talk with Amanda. She was sleepy and didn’t get everything they said, but the resident, Lena, came by later after I was there. All the teams were putting their heads together to figure things out; she explained, squatting down next to Amanda’s bed. I…

Since it was a weekend, Sunday didn’t produce much for us until late in the evening. The nephrologist kept leaning towards SCV syndrome. The SVC is the vein that drains blood from the upper extremities into the heart. From the looks of Amanda, it did seem that could be it. However, with decreased output and…

Friday night, I left the ER late; there was no sign of us getting a room on the transplant floor anytime soon, either. The drive was all too familiar, and I was on autopilot heading back. No telling how many times I made the run back late once we were in step-down after Amanda’s heart…

I had a post to catch y’all up, then things turned a little South. So, you’ll just get it all in one now. If you just want to go straight to the admission and what got us there, hop to the last few paragraphs. If not, read on. I am back with Amanda in Tennessee.…

Amanda is doing good and continuing to improve. I’m still back in Texas, but have a flight booked for Friday to head back up. I wasn’t able to work as much as I’d hoped, but I can’t gripe since I haven’t had a full day off since I’ve been back! I’m currently in Alpine, waiting…

Wednesday, the day after discharge, was an easy day for us; we both slept in. Amanda got up earlier than I did because she needed to take some meds. I found her passed back out in her recliner when I got up. Tank was still snoozing pretty well when I got up. He ended up…

As usual, the baby surgeons were the first in the room today. Wednesday is really coming around; she even made a quip about Amanda being tired of seeing her. Though her voice sounded as if a smile accompanied it, one did not! They seemed happy with things, and the NP said there was a small…