Sunday, Amanda’s weight was up again, not much, a pound, 1.5 the day before. It may not sound like much, but if you do that for a week, you’ll have 10 pounds real quick. They added one bolus that was only 1mg more than a single push she was taking three times a day at…

When we had our meeting with the social worker here at Vanderbilt for the initial approval, she said now is not the time to say no. She said if someone offered any help, now is the time to take it. I think I needed to hear that. It’s hard to ask for help even in…

I know I said I wasn’t going to post today, but this is essentially a post from Amanda. Saturday afternoon, I called YJ, our pastor, as I was on my way to Starbucks. He didn’t answer, but when I got back to the room, Amanda was on the phone with him. I loudly gave him…

Last night we were both exhausted but not sleepy, if that makes sense. Yesterday was a roller coaster ride for sure. The care partner came in for the midnight vital check, and we were wide awake with the TV on. They had turned the lights on and off, and promptly at midnight, left them on…

When I heard Amanda talking to someone on the phone and saying that the last two days have been from one extreme to the other, I was like that’s today’s title. Today alone has been a whirlwind. I already had the title of Square One typed out in my notes, but had to change that.…

I’m livening the place up a bit at a time. We brought a couple of blankets, one from our church and a prayer blanket from a friend’s church, and added them to the room. Slowly, it’s going to be a nice home for us. I still have the rolling cart that we used for Amanda’s…

The MRI scheduled for early in the morning was pushed to after lunch. It would have been perfect timing for me to get coffee after the MRI if Amanda had gone to the early morning one. She was NPO, no food, so we had to wait. We haven’t been hitting StarBs too hard. Amanda hasn’t…

Amanda was up before me to get a shower in case they came to get her for the liver biopsy early. It was a good thing she did since they came to get her not long after she was out. After she left, the team came by; I listened intently while they chatted in the…

By Sunday morning, Amanda had lost 12 pounds in one day. Though we were headed in the right direction with fluid, our battle with getting a tray from the cafeteria that was right seemed to prove difficult. We waited in the morning for the transplant team to come by. The PA finally said they would…

On Friday, we had a Zoom meeting to discuss what to expect with a transplant. Being our second round, we didn’t learn much new. A lot was about being out patient for the call, which didn’t apply to us anyway. After that, we were still in cheat mode, going for breakfast at a place close…