Last night, as I walked the hall to get some ice and water, the charge nurse said she just found out Amanda was back. She mentioned that when they called about a high heart rate, she looked at the board and saw Amanda was the culprit, telling them Oh yeah, she’s ok, we don’t worry…

Monday was an easy day. We needed to run a few errands, so we decided to see a movie while out. I really like the early-day showings; only three other people were in the theater with us. We saw the new Final Destination movie and had prepped by binge-watching all the previous films on Sunday.…

Thursday, we had the remainder of the appointments for the transplant evaluation. The first two were teleconference appointments, but they couldn’t be done out of state; we had to be in the state of Tennessee for them. We were already there for the other visits, I’m not sure why these had to be via teleconference.…

Our short two-day, three-night stay in Nashville is packed with busy days at the hospital for consults from everyone, from nutrition to the surgeon, and everything in between. Wednesday, heading to the first appointment, we didn’t know the area. It is a large campus that is part of the university. A bigger footprint than a…

As we got ready to leave, Monday Tank was confused. I think he wondered if we were going home or if Amanda was leaving us. As I packed the Yukon up, making a few trips, he got excited thinking he was going with us. Poor guy, I felt bad leaving him. This is the first…

The lapse in posts means we are stable, or at least there haven’t been any hospitalizations. Either way, things have been pretty steady for us. Amanda has been retaining fluid, but not nearly as bad as before, yet it is still slowly creeping up. The day after Amanda’s infusion, week before last, we had a…

Amanda has been doing well. We are currently getting the “mab” infusion right now. Her weight has been up and down, with a few adjustments to her IV meds last week. They started her on a midday dose of IV Bumex. She takes it orally usually, but with the extra fluid retention, they wanted to…

Sorry if I left you hanging, but if you’ve followed us for any length of time, you know that the absence of posts meant Amanda was discharged as planned and we are home! Thursday night, I was getting ready to leave and saw my bus, the one I can get on close to the hospital,…

I stayed a little later than I’d planned last night. Amanda asked Weren’t you going to leave early. She wanted me to leave so she could go to bed! On the ride home, I didn’t take the train but caught a bus that stopped close to the hospital. I swapped at the transit center to…

We went to the admitting to get all set to go the floor, then had to wait for transport to get us even though Amanda was already in her wheelchair. I told them I knew the way, but it was hospital policy to have transport take us. We came up in the service elevators to…