We’ve had some rough years, but this one has been particularly callous. I don’t even know where to begin this post, so I’ll start at the top. Buckle up because this is a rough ride.  We did start the year with a nice trip to Colorado in February. But not even a week before we…

The first night at home wasn’t too bad. We made a pillow barrier, think pillow fort, so the dogs would not bump into Amanda’s leg while we slept. Even with a king bed, it was pretty tight for the dogs and me on one side. Yes, we still let them sleep with us; they’re our…

Amanda was sitting up in the chair this morning as we waited for PT. She had her knee up and bent about 90 degrees, saying I think this is better than last time! I quickly said let me take a pic to send to the physical therapist. It took her six weeks of PT to…

We had an issue with Amanda’s main rejection medication night dose. They had the wrong dosage, and someone never updated the new dosage. It is an ever-changing dose dependent on the levels in her blood but has remained the same for a while until the infection. They took her off another rejection medication and wanted…

When we showed up this morning, admitting wasn’t open, I guess. Amanda had to do registration at the front desk in the middle of the lobby. I wasn’t too pleased with that she’s giving her and my dob, our job titles, address, and so on. That wasn’t the most professional or secure way to do…

Before I get into the knee, let me catch you up on the wound healing. When the doctor looked at it during the wound care visit, he had a cotton swap to push on it and said, “Oh crap,” as he did it. My heart sank, as did Amanda’s when he said that. Both of…

After my union meeting, our first stop Monday was at wound care. We got one of the better nurses for the bandage change. The change was much easier without the wound vac. I was antsy to see how it looked with the new treatment plan after the collagen mixture failed. It looked great and had…

We made the Monday, Wednesday, and Friday wound care appointments this week. I missed the Monday appointment because I was working, so someone else took her. I’ve been taking pictures of the wound to compare visit to visit; I had Amanda get a picture of it for me. She said the doctor was going to…

Tuesday was going to be a pretty packed day with labs in the morning in San Antonio, wound care in Uvalde in the afternoon, and then a visit with our primary doctor in the early evening. Amanda fell asleep, to no surprise, while we were watching a movie and missed taking her meds by almost…

We were both up pretty slow for the 8 am antibiotic dose. It’s not just the meds but you have to clean the port off, flush with saline, administer the antibiotic, flush, then put heparin in the line. It’s a process, and I’ve had to dig deep to bring back and remember all the steps.…