Saturday, when I got up, I was excited to take a shower and not worry about a doctor or nurse coming in. That was until I realized I didn’t have a shower curtain, rookie moving move! That didn’t stop me from taking one though. I lined the floor and toilet with a ton of moving…

It’s been crazy busy with the move, getting everything settled, well thrown in a bedroom or closet for now, and being back and forth to the hospital. Amanda’s hemoglobin was low Wednesday, and the iron the rounding transparent doc tried didn’t help. Even though Dr. Nair was in India, he was still answering calls and…

Moving to Houston and leasing an apartment is a big step for us. Especially signing a lease before Amanda is actually listed for a new heart. I have felt a prompting to get this apartment, though. It will make things so much easier for us while Amanda is receiving rejection treatments and with the current…

Let me backtrack and catch you up. By Sunday morning, Amanda was up five pounds in fluid retention. She was only peeing a little bit and only after taking the now heavy dose of the new oral diuretic. We knew it was time for the at-home injectable diuretic. It’s Lasix, just in a five-hour continuous…

OK, I’m gonna have to make this quick. I’m doing this with talk-to-text while driving, so you’ll have to forgive me for any grammatical errors. I should’ve been updating daily, but we’ve been busy. Amanda called the Team this morning about her fluid retention about 10 to 15 pounds now. They wanted her back in…

The ball was rolling to get us out of there after the team came by Friday. Although the new diuretic wasn’t cutting it, they still let us go home. They did, however, up the dose almost three times. We also got a sample of the new injectable. It’s a large pack about the size of…

The team started the new oral diuretic today, but it didn’t work. So they did a Bumex push later in the afternoon and another in the early evening. Dr. Nair mentioned an injectable diuretic we could do at home. They had some samples in the office we could take for a trial run once home,…

The fire I lit last night with my email was burning and doing its job this morning; the first doctor we saw this morning was Dr. Nair! He’s been working with Methodist here in Houston and got word today that they would consider Amanda’s case. He’s close with many of them and has been speaking…

As I drove late last night to the hotel, about 45 minutes in the rain, I prayed. I’m scared and haven’t been this scared in a while. I like to stay busy in the hospital. I write my posts, or I plan something. I was doing neither when I was in the car, and the…

I’m just going to jump right to it on this one and cut right to the chase. I don’t know how much I have in me today. The medical board met and decided it was too risky to do the transplant here. The deciding factor was the combination of the high antibodies, the previous infections…