• Somebody Prayed

    Late Saturday night, Amanda had some bad pain in her chest. They quickly ran an EKG and talked to the fellow on call. He ordered a double dose of pain meds, and that seemed to calm things down. When I text Amanda Sunday, she’d just tell me I’m just hanging out, I thought, well duh!…

  • Solo Day

    This one will be short and sweet; I’m tired and ready for bed! I went to work at a reasonable time this morning. My phone rang just before 7, and I had to report an hour and a half later. I had a horrible first trip back after being gone so long. Our train was…

  • Moving Along

    Sorry, this post is a little late. I was getting tired and was falling asleep typing last night. I’m at work now, so I thought I’d finish it while I had a little downtime on the train. So, this is Friday’s update. Amanda was less than pleased with the night nurse! She said that she…

  • An Extended Stay

    We had the same nurse today as yesterday. The first doctor in was the hospitalist. I asked again about the ENT consult. They told us they could easily see Amanda in the hospital, so I wanted to check again. They gave us the same line: We’ll see you in the clinic. That’s a little hard…

  • Go Red

    Hi Everyone! It’s Brittany with a short and sweet post. This Friday, February 7, 2025 is the American Heart Association’s Go Red for Women  day. Amanda participates every year and I would like to invite y’all to as well. Please wear red with us this Friday and send Amanda and Barkley your selfies/photos and some encouraging…

  • It’s Getting Real

    Amanda has been hurting, whole body pain. She says wherever the fluid is, she hurts. On top of that, the Soliris makes her feel terrible. We ended up staying on the floor for the infusion and not going to the ICU. Dr. Nair said it was more of a late-night decision to keep her close,…

  • Hard Pill to Swallow

    I was up early to ensure I would be there when Dr. Nair came by. It was rush hour, so Tank and I had to brave the traffic. There is nice wide St Augustine grass strips that is good for pooping, but it is right next to Main Street. And, of course, Tank likes to…

  • Hotel Waiting

    Tank was sad as we packed our bags to leave Monday morning. It’s funny how animals get when they see things coming. Zoey was always pouty pants the night before we’d leave for a trip. Tank changed his attitude quickly when I took him to the front door, where his bag was packed and ready…

  • Back Again

    On Friday, we had to head to San Antonio for Amanda’s Botox migraine treatment. Amanda needed to work for a bit first. I told her I was sleeping in and to wake me when she was ready. So, I took her, came back, and got ready myself. I needed to grab the mail; I had…

  • Back Home

    This morning, we slept late. I didn’t even get out of bed till just before 10. The nosebleed day was exhausting; I can only imagine how Amanda feels. Once up, I got ready. Tank had a midnight potty run, so he didn’t bother me or bother uncurling himself from next to his mom. He’s a…