The night before we left to make the trek home, neither of us could sleep. I guess we were like kids going on vacation. I woke up around 2 or 3, and Amanda was awake too. I was up early to shower, pack, and be ready for the doctors to show up. The cardio NP…

This post is going to be real short! We are home and had an uneventful trip back. Amanda did better than I thought she would, but if you asked her, she might have a different opinion! She did have some pretty bad bouts of pain. They would subside but still come again after much activity.…

Hi everyone, it’s Brittany again! This is a follow-up post to “Bestie Sleepover” where I mentioned I had more to say about some of my interactions on Sunday. First a quick recap, if you recall from my previous post, during my stay with Amanda, I headed out to pick up our liquid breakfast at StarB’s Sunday…

The hospitalist was the first to come by this morning. We’re really getting to where we don’t like her. I haven’t liked her much from the start, but Amanda is just now getting on board. She is being such a pain with the pain medications. I understand she doesn’t intimately know our case, but when…

Hi everyone, it’s Brittany again! I managed to get away this weekend for a quick trip to stay the night with Amanda. It wasn’t long enough… bestie time never is. The hard part isn’t sleeping in a hospital room chair, the hard part is leaving. And the leaving part is actually two-fold: first untangling myself…

After I got to the room last night, I didn’t leave until after lunchtime today. I just lounged around in the hotel robe, which was about mini skirt length on me! I had two showers and shaves; I was refreshed for sure. Brittany stayed until the afternoon, so I was off duty for a coffee…

Well, my bed setup didn’t turn out that bad. I took three blankets and stacked them on the crappy chair, laid my recliner back, locked the wheels, and put my foam on top of everything. I was worried about getting out and my weight shifting to the footrest and tumping over, but it didn’t happen.…

Amanda has been taking steroids since we’ve been here. Initially, a high IV dose, then a lower maintenance pill dose. I hadn’t noticed any of the symptoms we’d experienced before, except a little more of an appetite, until yesterday. Late last night, while watching a movie, she got unusually emotional. Today wasn’t a good day…

This post is all about the “Big Gun,” Solaris. This is the medication that is supposed to do the trick. A big prayer that this treatment is the big fix. There was talk of other treatments after the PLEX and IVIG, such as next steps if they didn’t work. But there has been no talk…

I was awakened by the nurse giving Amanda meds at five this morning. She left the door open, and I heard a code blue, a call to someone crashing or in need of resuscitation, for Cooley 8A. That’s where the CTICU is and makes things a little more real. I was researching the new medication…