• Busy toeday

    I woke in the middle of the night from hitting my knee on the back of my chair bed. It startled me, and I didn’t know where I was, so I freaked out for a bit! I must have hit my foot on something as well. You OGs might remember I had both my big…

  • Moving forward

    The transplant nurse practitioner came by this morning; we don’t like this one. We have a favorite transplant NP, but we haven’t seen her yet. Amanda had already told the nurse she wasn’t taking the new medication because of the side effects. Amanda told the NP how she was in pain and had the hard,…

  • Back to rejection

    Amanda said that after the cath, the fellow initially said everything was good. She mentioned how he threaded the catheter fast, and she could feel it going up; I can’t imagine how that feels! She also feels when they snip the biopsy, mentioning that before. She’s always been sensitive with her heart (even the new…

  • Biopsy

    As I walked outside this morning to grab a coffee, I was glad that the delivery last night had a heavier pullover in it. The cold front had made its arrival, and it was a little nippy! My buddy was not outside this morning he was tucked back inside. The usual rowdy homeless must have…

  • Visitation

    That title sounds like we’re in prison. I guess it kind of feels like it! We had multiple visitors today. Amanda’s aunt called me this morning to ask if they could drop by. They live in the hill country and were in the area seeing their kids. They stayed, and we chatted for a while…

  • Not any better

    As I walked across the street to get coffee this morning, a homeless lady screamed obscenities. I joked with my security guard buddy that they came and got his friend yesterday afternoon. He mentioned that guy had been a problem all day. I said something about the screaming lady, and he joked they must have…

  • More waiting

    During the underwear debacle, I also picked up a foam topper to add to my chair/bed in an attempt to make it more bearable. I woke up with a sore back but did not need to take anything for it. I have one more trick up my sleeve to get better sleep in that thing.…

  • For laughs

    Yesterday was laundry day, so I went by a cleaners to drop off some things at their wash and fold and get a pair of pants pressed. The first one couldn’t get anything back till Tuesday. The next had a 10-pound or $30 minimum for wash and fold. As I asked about wash and fold,…

  • Atypical

    When patients are admitted to a hospital for an extended time, they typically are given shots of blood thinners. This is usually in the belly. Amanda’s belly is black and blue now, and it looks horrible. Nothing we aren’t used to; she was on a blood thinner for a long time before transplant. One side…

  • Moving on up

    We made it to the “floor” late last night, and we already want to be back in the ICU. Surprisingly, I was able to get all of our stuff packed into the cart. Only because I already took two loads to the car! I was ready to go, it didn’t take me but a couple…