• A Busy Day of Waiting to Wait

    By Sunday morning, Amanda had lost 12 pounds in one day. Though we were headed in the right direction with fluid, our battle with getting a tray from the cafeteria that was right seemed to prove difficult. We waited in the morning for the transplant team to come by. The PA finally said they would…

  • Surrendering Time

    On Friday, we had a Zoom meeting to discuss what to expect with a transplant. Being our second round, we didn’t learn much new. A lot was about being out patient for the call, which didn’t apply to us anyway. After that, we were still in cheat mode, going for breakfast at a place close…

  • A Long Drive to Nashville

    Monday was a flying trip back to Houston. Poor Tank had been going with us back and forth, so he was sad when packing, but now gets excited when I load the Yukon, thinking he’s going with us; this morning was no different. He is a rescue and had terrible separation anxiety when we got…

  • Busy Weekend Home

    Ok, I know it’s been a minute since my last regular update. Last update, we were inpatient in Houston, and now we are in Nashville, admitted at Vanderbilt. I’ve been too busy to make updates. When I pulled my Mac out last night in the hotel, I wasn’t feeling it and fell asleep with Amanda…

  • From the Beginning to Change of Heart 2.0

    If you read our medical journal regularly, this post may seem redundant. If you need an update on what is going on, I’m going to do my best to catch you up from the beginning of Amanda’s heart journey as quickly as I can. I’ll get back to my regular journal posts and catch everyone…

  • One in the Hand Better Than Two in the Bush

    Looking back, with me starting to write yesterday’s post in the morning while we were processing things and finishing in the evening after we made a decision might have been confusing! We are 100 percent going to Nashville for Amanda to be admitted solid till transplant. I think it was a sign in itself that…

  • Tennessee Calling

    Last night, as I walked the hall to get some ice and water, the charge nurse said she just found out Amanda was back. She mentioned that when they called about a high heart rate, she looked at the board and saw Amanda was the culprit, telling them Oh yeah, she’s ok, we don’t worry…

  • Admitted

    Monday was an easy day. We needed to run a few errands, so we decided to see a movie while out. I really like the early-day showings; only three other people were in the theater with us. We saw the new Final Destination movie and had prepped by binge-watching all the previous films on Sunday.…

  • Vanderbilt Decisions

    Thursday, we had the remainder of the appointments for the transplant evaluation. The first two were teleconference appointments, but they couldn’t be done out of state; we had to be in the state of Tennessee for them. We were already there for the other visits, I’m not sure why these had to be via teleconference.…

  • Vandderbilt Plot Twist

    Our short two-day, three-night stay in Nashville is packed with busy days at the hospital for consults from everyone, from nutrition to the surgeon, and everything in between. Wednesday, heading to the first appointment, we didn’t know the area. It is a large campus that is part of the university. A bigger footprint than a…