As we got ready to leave, Monday Tank was confused. I think he wondered if we were going home or if Amanda was leaving us. As I packed the Yukon up, making a few trips, he got excited thinking he was going with us. Poor guy, I felt bad leaving him. This is the first…

The lapse in posts means we are stable, or at least there haven’t been any hospitalizations. Either way, things have been pretty steady for us. Amanda has been retaining fluid, but not nearly as bad as before, yet it is still slowly creeping up. The day after Amanda’s infusion, week before last, we had a…

Amanda has been doing well. We are currently getting the “mab” infusion right now. Her weight has been up and down, with a few adjustments to her IV meds last week. They started her on a midday dose of IV Bumex. She takes it orally usually, but with the extra fluid retention, they wanted to…

Sorry if I left you hanging, but if you’ve followed us for any length of time, you know that the absence of posts meant Amanda was discharged as planned and we are home! Thursday night, I was getting ready to leave and saw my bus, the one I can get on close to the hospital,…

I stayed a little later than I’d planned last night. Amanda asked Weren’t you going to leave early. She wanted me to leave so she could go to bed! On the ride home, I didn’t take the train but caught a bus that stopped close to the hospital. I swapped at the transit center to…

We went to the admitting to get all set to go the floor, then had to wait for transport to get us even though Amanda was already in her wheelchair. I told them I knew the way, but it was hospital policy to have transport take us. We came up in the service elevators to…

We’ve been straying put since Amanda hasn’t been feeling good, just going to the clinic and cancer center when we have to. I didn’t even crank the Yukon up Friday through Sunday and only walked outside the apartment complex to take Tank for a walk. When we were packing things up to move here, Amanda…

Like last time, Amanda did well through the infusion but tanked afterward in the evening on Monday. She started feeling bad once we got home, which only worsened through the night. The double Bumex before and after the treatment probably didn’t help either. It was good that I was home, too; she was moving around…

I know I haven’t posted in a while; I’m trying to wean y’all off of daily posts or even every other-day posts! With work I can see it is going to be hard posting. Like traveling posts, I don’t much like writing at home. I guess it’s easier to post when I have nothing going…

I know, I know, yes, we’re still alive; sorry for the delay in posting! Staying at home both ways at work didn’t leave me much time to write. I wrote most of this on the train or in a van at work. This will get you caught up through Saturday morning, though.  Amanda’s weight was…