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  • Ridges and valleys

    Amanda’s rate was a little lower after a night’s sleep, and the new rate medication had time to kick in. The medication is Flecainide, an anti-arrhythmic specifically made for lowering arrhythmias. So far, she has been on beta blockers, drugs that will reduce her rate, as well as blood pressure (which is typically on the…

    December 28, 2024
  • A tough evening

    I forgot to post about the cards. We received nearly 50 cards today. Mostly from people we did not know, from Massachusetts and Oregon to Colorado and California and all over Texas. She received many cards from all over from people we did know with sweet notes, too. Many of the cards where from a…

    December 28, 2024
  • Ablation day

    I slept horribly last night; I don’t think Amanda slept well, either. There was a tyrant charge nurse barking orders, you know, give some power, and they’ll wield it to the max. I heard her early in the evening but never pinpointed which one she was, but I could definitely hear her all night. Once…

    December 27, 2024
  • A low-key afternoon

    The PLEX treatment today was only albumin, so it didn’t wipe her out as badly as the plasma. She still didn’t feel great afterward. The cold feeling still hit her; I told the tech and asked him to turn the machine temperature up early. Amanda didn’t feel like eating, but I had leftovers from dinner…

    December 27, 2024
  • Plot twist

    We weren’t awake long before the day nurse came in and said you’re NPO, no food, and are having an ablation today. Have they talked to you? Um, as a matter of fact, they have not! Not long after, the EP came in, followed by his budding fellow that we talked to yesterday. This is…

    December 26, 2024
  • Making the most of it

    We might have come to the end of the Ambien saga. Amanda got the right sleeping meds last night. A doctor who was on the night before knew the story, so he came to check. I said 10 at 10, and he was like, yeah, okay. 10mg at 10 pm; I’m going to pound that…

    December 26, 2024
  • It’s beginning to look a lot like Christmas

    I woke up fairly early when the night nurse stirred, but I went back to sleep. A couple of hours later, I woke up to the day nurse writing his name on the board and talking about the Caribbean cruise he had just returned from. My first thought was, “We’re stuck in the hospital over…

    December 25, 2024
  • Joy in the morning

    I woke up on Monday physically, mentally, and emotionally better. At Brittany’s morning check-in, she said Amanda was much better, too. I was reminded of the verse in Psalms that says joy comes in the morning. It’s not rainbows and butterflies all the time; some days just plain suck. It was a tough weekend for…

    December 24, 2024
  • Tag you’re it

    I love Brittany, she’s the best. Many would have come and stayed with Amanda, but I don’t think anyone would have been as good of an advocate for Amanda in my stead. Yall should love her, too, because it’s been a long day, and I don’t think I would have been up for making a…

    December 24, 2024
  • Sunday hospital update

    Hi! It’s Brittany again. Here’s my update for Sunday 12/22: Amanda got some rest last night, finally, after getting the Ambien in her system after midnight. I was up around 5 am and became vigilant about keeping the machine silenced. Amanda’s numbers are all out of whack and out of normal ranges – heart rate,…

    December 23, 2024
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