As I left last night to catch my bus, I was afraid to wait for the one close by with its late night schedule of every 30 minutes. So I walked the TMC transit center, a 10 minute walk according to Apple Maps, but my long legs shaved two off of that. Still eight minutes…

This morning I set my alarm 30 minutes later than I thought I did, so I had no time to spare. I got ready and checked the bus text line, it showed a bus would be there six minutes past the hour. I could make it so I took off. I checked halfway there, it…

Sunday, after I woke, I went to the door to get some packages. City living comes with 4-8 am next day Amazon deliveries. When I stepped outside, my phone dinged, it was Amanda texting that she was going to bed from the night before. No wonder she was tired when I called her the night…

Saturday, when I got up, I was excited to take a shower and not worry about a doctor or nurse coming in. That was until I realized I didn’t have a shower curtain, rookie moving move! That didn’t stop me from taking one though. I lined the floor and toilet with a ton of moving…

It’s been crazy busy with the move, getting everything settled, well thrown in a bedroom or closet for now, and being back and forth to the hospital. Amanda’s hemoglobin was low Wednesday, and the iron the rounding transparent doc tried didn’t help. Even though Dr. Nair was in India, he was still answering calls and…

Moving to Houston and leasing an apartment is a big step for us. Especially signing a lease before Amanda is actually listed for a new heart. I have felt a prompting to get this apartment, though. It will make things so much easier for us while Amanda is receiving rejection treatments and with the current…

Let me backtrack and catch you up. By Sunday morning, Amanda was up five pounds in fluid retention. She was only peeing a little bit and only after taking the now heavy dose of the new oral diuretic. We knew it was time for the at-home injectable diuretic. It’s Lasix, just in a five-hour continuous…

OK, I’m gonna have to make this quick. I’m doing this with talk-to-text while driving, so you’ll have to forgive me for any grammatical errors. I should’ve been updating daily, but we’ve been busy. Amanda called the Team this morning about her fluid retention about 10 to 15 pounds now. They wanted her back in…

The ball was rolling to get us out of there after the team came by Friday. Although the new diuretic wasn’t cutting it, they still let us go home. They did, however, up the dose almost three times. We also got a sample of the new injectable. It’s a large pack about the size of…

The team started the new oral diuretic today, but it didn’t work. So they did a Bumex push later in the afternoon and another in the early evening. Dr. Nair mentioned an injectable diuretic we could do at home. They had some samples in the office we could take for a trial run once home,…