Let me backtrack and catch you up. By Sunday morning, Amanda was up five pounds in fluid retention. She was only peeing a little bit and only after taking the now heavy dose of the new oral diuretic. We knew it was time for the at-home injectable diuretic. It’s Lasix, just in a five-hour continuous…

OK, I’m gonna have to make this quick. I’m doing this with talk-to-text while driving, so you’ll have to forgive me for any grammatical errors. I should’ve been updating daily, but we’ve been busy. Amanda called the Team this morning about her fluid retention about 10 to 15 pounds now. They wanted her back in…

The ball was rolling to get us out of there after the team came by Friday. Although the new diuretic wasn’t cutting it, they still let us go home. They did, however, up the dose almost three times. We also got a sample of the new injectable. It’s a large pack about the size of…

The team started the new oral diuretic today, but it didn’t work. So they did a Bumex push later in the afternoon and another in the early evening. Dr. Nair mentioned an injectable diuretic we could do at home. They had some samples in the office we could take for a trial run once home,…

The fire I lit last night with my email was burning and doing its job this morning; the first doctor we saw this morning was Dr. Nair! He’s been working with Methodist here in Houston and got word today that they would consider Amanda’s case. He’s close with many of them and has been speaking…

As I drove late last night to the hotel, about 45 minutes in the rain, I prayed. I’m scared and haven’t been this scared in a while. I like to stay busy in the hospital. I write my posts, or I plan something. I was doing neither when I was in the car, and the…

I’m just going to jump right to it on this one and cut right to the chase. I don’t know how much I have in me today. The medical board met and decided it was too risky to do the transplant here. The deciding factor was the combination of the high antibodies, the previous infections…

The day nurse was one that we’d had before. She remembered us and that we were plant-based, even though I think she disapproved. She also remembered how we don’t like the cafeteria food trays to be opened, joking about the smell. I had a union meeting this morning. It was actually at our downtown place…

I had a good trip back from Alpine but was late getting off; too late to drive to Houston, though. That is one thing that will make it easier when I make a seniority move to make trips from San Antonio to Houston. My engineer suggested I use my repurposed air mattress topper and blow…

I woke up early, couldn’t sleep, and thought of the apartment. So, I emailed the leasing manager to ask what it would take to get it off the market. I didn’t want to lose a big deposit if we didn’t have to. Amanda and I decided we should not do anything until she was officially…