Last night, we went for a walk later in the evening. I didn’t have to pull back on the reins too much; she was easy out of the gate this time. She didn’t make it very far, though. She is so much worse than when we arrived a week ago. Amanda asked how long we…

I slept well on my recliner with a chair foot extension and “borrowed” air mattress topper! I had the snacks in a cubby that Amanda could reach while I was gone. The drawers are stacked with the good no-tie hospital gowns and extra towels. These gowns are hard to come by, and why they’d ever…

Dr Nair came by in the evening; I was watching my phone for our dinner to be delivered when he walked in. He seems to be the bearer of bad news nowadays. He doesn’t round on the floor much anymore and stays in the ICU. That is why he has wanted to put us there…

When my alarm went off this morning, at first I wondered what it was going off so early for! My perfect time to leave was 4:45, which would put me through San Antonio before rush hour and to Houston after rush hour, or so I thought. I hit traffic about 15 miles out of San…

Late Saturday night, Amanda had some bad pain in her chest. They quickly ran an EKG and talked to the fellow on call. He ordered a double dose of pain meds, and that seemed to calm things down. When I text Amanda Sunday, she’d just tell me I’m just hanging out, I thought, well duh!…

This one will be short and sweet; I’m tired and ready for bed! I went to work at a reasonable time this morning. My phone rang just before 7, and I had to report an hour and a half later. I had a horrible first trip back after being gone so long. Our train was…

Sorry, this post is a little late. I was getting tired and was falling asleep typing last night. I’m at work now, so I thought I’d finish it while I had a little downtime on the train. So, this is Friday’s update. Amanda was less than pleased with the night nurse! She said that she…

We had the same nurse today as yesterday. The first doctor in was the hospitalist. I asked again about the ENT consult. They told us they could easily see Amanda in the hospital, so I wanted to check again. They gave us the same line: We’ll see you in the clinic. That’s a little hard…

Hi Everyone! It’s Brittany with a short and sweet post. This Friday, February 7, 2025 is the American Heart Association’s Go Red for Women  day. Amanda participates every year and I would like to invite y’all to as well. Please wear red with us this Friday and send Amanda and Barkley your selfies/photos and some encouraging…

Amanda has been hurting, whole body pain. She says wherever the fluid is, she hurts. On top of that, the Soliris makes her feel terrible. We ended up staying on the floor for the infusion and not going to the ICU. Dr. Nair said it was more of a late-night decision to keep her close,…