Having a hospital trip mixed with a vacation isn’t that bad for us. Sadly, hospital trips were our vacations for over a decade! Since Amanda first got sick all those years ago, we only went on two trips for pleasure. One cruise, just after her first pacemaker, which I had to call to get approval…

Amanda has been doing better since the medication change made on our last Houston trip. She sleeps better and feels her heart is much more under control during the day. With the new symptoms now masked by the medication, it’s still disheartening that we even have this issue at all, especially how it all started.…

The hotel we are staying at now in the medical is excellent, with easy access to the hospital. We just go over to a sky bridge that connects directly to the hospital. It makes for an easy stay without driving or even going outside. The only drawback is that it’s expensive. We stayed on a…

Amanda seems to have gotten worse, well, a worse symptom. Sunday night, as I was driving home, she called me. Her voice told me something was wrong; she asked if I was close to home. She’d fainted in the closet, not hitting her head but twisting the new knee around a bit. This was one…

Ok, I know I’m terrible at posting once we get home! Sorry, but life gets in the way, and I get very unmotivated to write once I get home! Our trip back from Colorado was uneventful and filled with coffee, french fries, more coffee, some tea, and a long drive! The night before we left,…

As if all that I laid out in the last post wasn’t enough, as the OxiClean guy would say, but wait there’s more! I had a cousin pass, and I went back to Louisiana for the funeral. Amanda had to stay behind because there was a women’s conference at the church she was leading worship…

We’ve had some rough years, but this one has been particularly callous. I don’t even know where to begin this post, so I’ll start at the top. Buckle up because this is a rough ride.  We did start the year with a nice trip to Colorado in February. But not even a week before we…

The first night at home wasn’t too bad. We made a pillow barrier, think pillow fort, so the dogs would not bump into Amanda’s leg while we slept. Even with a king bed, it was pretty tight for the dogs and me on one side. Yes, we still let them sleep with us; they’re our…

Amanda was sitting up in the chair this morning as we waited for PT. She had her knee up and bent about 90 degrees, saying I think this is better than last time! I quickly said let me take a pic to send to the physical therapist. It took her six weeks of PT to…

We had an issue with Amanda’s main rejection medication night dose. They had the wrong dosage, and someone never updated the new dosage. It is an ever-changing dose dependent on the levels in her blood but has remained the same for a while until the infection. They took her off another rejection medication and wanted…