I woke up fairly early when the night nurse stirred, but I went back to sleep. A couple of hours later, I woke up to the day nurse writing his name on the board and talking about the Caribbean cruise he had just returned from. My first thought was, “We’re stuck in the hospital over…

I woke up on Monday physically, mentally, and emotionally better. At Brittany’s morning check-in, she said Amanda was much better, too. I was reminded of the verse in Psalms that says joy comes in the morning. It’s not rainbows and butterflies all the time; some days just plain suck. It was a tough weekend for…

I love Brittany, she’s the best. Many would have come and stayed with Amanda, but I don’t think anyone would have been as good of an advocate for Amanda in my stead. Yall should love her, too, because it’s been a long day, and I don’t think I would have been up for making a…

Hi! It’s Brittany again. Here’s my update for Sunday 12/22: Amanda got some rest last night, finally, after getting the Ambien in her system after midnight. I was up around 5 am and became vigilant about keeping the machine silenced. Amanda’s numbers are all out of whack and out of normal ranges – heart rate,…

This is going to be a short journal entry (so much for that I got to typing and kept going; maybe I just needed to process today). I am tired and want to try and get one decent night’s sleep before I head back to the hospital tomorrow. The sleep last night wasn’t too good.…

Hi All! It’s me, Brittany, taking over the journal to give an update. I can’t begin to describe how incredibly tough AND kind Amanda is. Not long after I arrived yesterday, they began her PLEX treatment which works to filter all of Amanda’s blood to get out the anti-bodies (it’s way more complicated than that,…

This has been a terrible day, to say the least. Which started with the alarming call about Zoey. Amanda has had issues with her IVs, and we talked with them about a PICC line. This is the same line she had when we were administering  IV antibiotics at home for the sternal infection earlier this…

Our cardiologist came by last night, apologizing that he hadn’t made it by yet. Amanda said this was the first time he’d fest up to her freaking him out. We got the full scope now, which kind of freaked us out. These treatments won’t be the only ones. At the end of the PLEX, she…

There is a cardiothoracic fellow who is younger and Asian; Amanda calls her Yang. If you are a Grey’s Anatomy fan, you get the reference. She came in while I was out and said there would be six total rounds of steroids. So that was a little shocking. We don’t think there will be a…

I do not like making these kinds of posts, but we have too many people to count who are asking how to help, which is fantastic! So I’ll lay out all the ways you can help here. God has been providing for us even before we knew we’d need help. He is so good. Bless…